andreashettle:

mmmyoursquid:

seananmcguire:

mmmyoursquid:

chameleonchild:

eenymeenypia:

mmmyoursquid:

People love to talk about whether or not disabled people can work

but if you can work just fine and your disability is destroying your ability to have a life outside of work (because work takes all your energy and more)

Dead silence. Nobody cares.

File this under, oh you can be active for 4 hours? You can work part-time. Um no, I have to get ready for work (30 min) get to work (15 min) get home from work (15 min) feed myself all day (30 min) maintain myself, my home and my life (15 min, yeah right), which leaves 15 min for work and absolutely nothing else.

This is so accurate, back after I’d relapsed I wanted to try and go in for one class at school so I could still stay in contact with the education system. I let slip during a meeting that I managed to drag myself to that I could manage about 4 hours of activity a week, which the teacher sprang on to mean I was being lazy for just trying to get to 1 hour class. Never matter that it was 30 minutes travel, that I would have to get washed and dressed, that I would probably still need to recover for 3 days from it. 

Far too often abled people see the things they do easily as “non activities”, they don’t realise that for many disabled people these things have to be carefully planned and measured, and sometimes they simply can’t be done.

reblog bc the non activities thing seems really important words

I get X number of pain-free steps per day right now, which means that, for large conventions (like SDCC), I need to be in a mobility device.  I had someone ask if I used up my steps every day before transferring to the scooter, and look surprised and a little horrified when I said “no, I save them so I can go to the bathroom unassisted.”  Like, they had never considered that walking is involved in peeing.

!

Reblogging for the important point that the term “activity” may mean something very different and much broader for a disabled person with a chronic pain or fatigue related condition compared to its meaning for a non disabled person. If you’re tired enough, simply sitting up in a chair rather than lying in bed is an activity that drains energy otherwise usable for other things. A thing I knew from other people with pain and fatigue related conditions, but worth reinforcing for followers who didnt know or had forgotten.
  1. elliottaster reblogged this from crippled-fox
  2. softlyshining reblogged this from crippled-fox
  3. desertedreign reblogged this from witchaj
  4. lifiari reblogged this from stitchesandscrapes
  5. odderancy reblogged this from phenyxsnest
  6. vivi-here reblogged this from nerdypagan
  7. kaiyumidiary reblogged this from nerdypagan
  8. the-tightly-tangled-web reblogged this from nerdypagan
  9. nerdypagan reblogged this from phenyxsnest
  10. twilightskylene reblogged this from phenyxsnest
  11. phenyxsnest reblogged this from thegoldensoundtwice
  12. stitchesandscrapes reblogged this from disabilitydumping
  13. robot-with-anxiety reblogged this from andreashettle
  14. greywolff77 reblogged this from everylittlethingshedoesispainful
  15. bnandjerrys reblogged this from save-the-stars
  16. save-the-stars reblogged this from princeoftenderness
  17. guil-t-ventz reblogged this from chronicillnesstruths
  18. rustysilverlining reblogged this from goron-king-darunia
  19. goron-king-darunia reblogged this from actualaster
  20. thenerdwhocantdraw reblogged this from princeoftenderness
  21. hushedstars reblogged this from princeoftenderness
  22. princeoftenderness reblogged this from writingfeedsthedarkestones
  23. spettrocoli reblogged this from kvothbloodless
  24. finallyhaunted posted this